Jonny Kennedy - boy with no skin...

[::Hayley::]

Did anyone watch this show on UK tv?
This young man - he was only 36 - was born with a terminal illness called EB which means a constant skin loss throughout live.
This show was like a fly-on-the wall documentary showing Jonny's last few months alive.
He had incredible spirit.... and although upsetting to watch, I feel like he's happy now!


http://www.channel4.com/health/microsites/B/boy_whose_skin_fell_off/index.html

[busybeeburns]

ooo there's two threads :o ;)

also http://www.debra.org.uk/help/jk.htm

please read :cool:

[::Hayley::]

2 threads?

thanks for that link btw :)

[Mimixxx]

Ooops sorry didn't see this thread!

[*Ali*]

yeah i saw that. i was totally unprepared for what i saw. i had never heard of that disease before but oh my god how hard it must have been for him. he had an incredible sense of humour though, i don't know anyone who would put heinz beans on their coffin to make people laugh at their funeral!